gridlore: One of the "Madagascar" penguins with a checklist: [x] cute [x] cuddly [x] psychotic (Penguin - Checklist)
Today I worked a corner that was quite the physical challenge. Right in front of the school with two uncontrolled crosswalks to cover. Uncontrolled means there is no traffic light or pedestrian signal. It's all on me to gauge breaks in traffic and groups of kids to make crossings.

Since I was covering two streets, this also meant I was hopping to keep up with parents who couldn't wait ten seconds for me to clear one road before moving to another. As a result, I had to move as fast as I could, whistle in mouth, to make sure that I was at least trying to cover everyone. Crazy corner, to be sure. But fun, as the kids and parents were great. I'm covering this same corner Monday afternoon.

But all this rushing made me think about how far I've come in my stroke recovery. Right after the stroke back in the summer of 2013, I could walk, but not very well. I suffered from balance issues as well as some fairly severe proprioception problems that had to be addressed before I could be trusted to safely walk around unsupervised.

Proprioception, in case you didn't know, is your real sixth sense. It is your brain's ability to know the position of your various limbs without seeing them. If you want an example of how this works, find something near you that you can pick up. Close your eyes, and do just that. Your brain has mapped where the object is and knows where your hand and are during the entire exercise. Losing proprioception means your mental perception of limb positioning can be off by pretty significant factors. My right foot, for example, could feel several inches from its actual location. Which can be deadly if you are walking down a flight of stairs.

This was a big part of my physical rehabilitation, both in- and out-patient. Just walking; first with a walker, then a cane, and finally with no support. Eyes closed, eyes open, forwards, backward, up stairs and down . . . I was making my brain build new pathways to monitor body position and balance. There was also the tile box, a fiendish contraption that put me - well secured by a safety harness - on a tilting platform while watching a scene that was moving in a different way. This really challenges even people with no brain damage.

But it all worked. I was able to walk, with a cane for the first few years, and gradually became more and more active. I now only use the cane when I am feeling poorly. Because the issues I dealt with are still there, and they do come out when I'm tired or stressed. One of the reasons I've come to love my bright orange shoes (other than the Giants reference) is that I can see them at the edge of my field of vision as I walk, and just that glimpse of orange is enough to snap my perception of where my foot is back in line with reality.

So I've been walking more and more. To be honest, my legs have always been my best feature and as a former Infantryman, walking is in my blood. Walking, whether in the park or at the gym or at the mall, also helps slow the progress of my peripheral neuropathy. So I get out whenever I can, and is one of the reasons I love my current job.

I've even signed up to do two 5Ks this year. Kirsten started doing them and has a blast, so why not? Another milestone, no pun intended, to show that I am healing. I might even train to walk a 10K at some point. Keep getting better is my motto, and of course, I have Drill Sergeants living rent-free in my brain that keep pushing me to go a little bit farther every day.

You will notice that throughout this piece I have specified walking. There is a really good reason for that. During my physical therapy, we learned that I simply am no longer built for running. My brain can't handle the coordination required to get that kind of motion, and I quickly lose my balance or lose track of where my right foot is. The best I can manage is a slow jog or a brisk walk.

But I'm in no real hurry to get anywhere, to be honest. My days of needing to be first in line or the first to get something are long behind me. I'm just happy that I'm still able to get there on foot.
gridlore: Doug looking off camera with a grin (Default)
In the last three days, I have . . .

  • Finished filling in the Restaurant Guide spreadsheet.

  • Went to a meeting to discuss the layout of the portion that is going to be printed.

  • Got online at 2300 to grant file access to the layout designer. (D'oh!)

  • Started working on an article for the next progress report about local markets and drug stores.

  • Went to the gym and had a solid workout.

  • Took all the garbage and recycling to the cans, and then to the curb.

  • Dumped our cans and Type-1 plastics into their bins. Not enough for a recycling run, yet.

  • Did the dishes a couple of times.


All while doing things like eating and sleeping. I'm extremely happy that I've managed to remain functional through all these things. Recovery happens.

Next up, I'm filling out the application to be a crossing guard and bemoaning the lack of Throwback Mt. Dew in the house.
gridlore: Doug looking off camera with a grin (Fail Black)
I've been sitting here in front of the computer since about 0730 this morning. And I've accomplished absolutely nothing. I haven't eaten. I'm still wearing the hoodie I donned when I got up despite it being warm. I just forgot to take it off. Like I forgot to eat.

The hoodie is off now. I'm wearing my San Jose Sabercats shirt. No idea if I put it on this morning or slept in it. Pretty sure the blue jeans are fresh, since there's no belt and wallet. Based on that, I'm going to assume clean clothes. Go me.

I had plans for the day. I was going to round up all the recycling from home and Earth Baby and take it in. But my brain never clicked on that. I forgot about it the moment Kirsten walked out the door, and by the time they notion wandered back in, I was already done. My brain, dealing with leftover stress from yesterday, is failing to launch. I can't muster the will to do anything, because when I think about doing, my brain overloads. Just writing this a struggle.

Maybe I did eat. I'm not that hungry right now. Don't see any breakfast dishes or crumbs from a sandwich, so I suspect I just closed my 0900 "Eat Breakfast" alarm on the iPhone and immediately forgot that I'm supposed to do something at that point.

Hey! I did remember to take my morning pills! And the anti-coagulation clinic called with a med adjustment and I immediately wrote it down! And put the Post-It where it is supposed to go! Can I get an Army Commendation Medal for that?

I'm dealing with residual stress because yesterday we had to go and beg for money. The state stopped paying my MediCal premium, and I never saw the notice. Even if I had, I can't read bureaucratese anymore. It shuts me down. Kiri, who is a Goddess, got everything organized and did 90% of the talking. Things are looking good, but I'm stressed because it was casually mentioned that there is a MediCal dental plan that might be able to get me dentures that actually work. I've been trying to find this information for months! But I can't concentrate that long.

I should be writing. I'm trying to do two novels -- one SF, the other Urban fantasy -- along with a bevy of ideas for short stories and the Great Church for Pathfinder that I'd love to sell to someone so my sole big gaming credit won't be a book written 16 years ago. But I can't get the thoughts together. Just getting this down is torture. And my aphasia is so bad today that the voice recognition software is I use is pointless. So ideas flit around my head, dissolving when I try to make them come out. Very frustrating.

This is what living with a stroke is like for me. I could take it when my body was trying to kill me, but my brain? It's where I live, and now it's broken as well. I have good days, to be sure. But this is a bad day, and I'm just terrified that it is a sign of things to come.

1519. I've been writing this for close to 45 minutes. And while I had more things to say, they won't come out. So I'll end this here.
gridlore: Doug looking off camera with a grin (Penguin - Exploding)
Long-time readers will remember that for a time I was working very hard to get a job as a public safety dispatcher. I was in the 99th Percentile on the POST exams, interviewed fairly well, and even made a few hire lists.

Then I got back to driving. When that ended due to my health, I came close to applying for a few dispatching jobs, but they would have required relocating, and with [personal profile] kshandra starting at EarthBaby, I didn't want to upset that apple cart.

Then I had my stroke.

Today, I keep hearing how the San Jose Police Department is hiring 19 dispatchers. Dates for the POST tests, hiring dates, starting salaries, the whole nine yards.

And I can't do it. Besides the aphasia, I get tired too fast. So one of my dream jobs is opening up literally two miles from me, and I can't bloody do it.

Yes, throwing things at the walls. Just the thing right now.
gridlore: Doug looking off camera with a grin (Default)
I don't remember you.

Thanks to my stroke I have almost zero retention of names and faces these days, even with people that I've known for decades. Unless you are part of my daily life, I stand a really good chance of having a blank look when you say hi.

Even with a name I might have problems. So many people go by different names in different places, I might know you as Captain Skippy from Live Journal, but not remember that you're Bob in real life.

So I beg patience and help. This, along with the aphasia, are the two most annoying aspects of  surviving my stroke.

I'm also broke, so if anyone wants to buy me food or a drink, I'll not say no.

Thanks!

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gridlore: Doug looking off camera with a grin (Default)
Douglas Berry

October 2023

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