gridlore: (Burning_Man)
I am experiencing some powerful conflicting emotions right now.

On the one hand, I know we can't go to the Burn this year. Halford's Liver, we'd end up in adjacent beds in Renown Regional's ICU by Thursday. Even without the breast cancer, my suck year would have put us so far behind in fitness and readiness. . . after last year, I need to be PREPARED. I am not ready for the Playa physically, mentally, or emotionally.

On the other hand, I need to be there. I need to walk to the inner edge of Esplanade to tell the Black Rock Desert to test me because I am stronger than it is. I need to tell stories as my gift and be with my family of choice. I sent them a Kooshball for Kirsten, but I left myself out as usual. I need to be 1SG Bullhorn, a role I love. I had been invited to work with Gate, Perimeter, & Exodus, which I was really looking forward to. As with my job as a Crossing Guard, it would be giving back to the community.

But the main thing is that since 2014, Burning Man has done more to help me return to being me than any therapy or rehab ever could. Like every infantryman, I was forged in fire and shaped by hammers. I had steel inserted in place of a spine (that explains the lower back pain, I suppose) and learned that pain is temporary, pride is forever, and what you thought were the walls of your limitations need to be broken down to open your possibilities.

In short, I am not a Sensitive New Age Guy. (However, I do want to see the Barbie movie.) Kid gloves don't work on me. Give me a mission and an op order. Tell me to make shit happen. Sua Sponte!

On my very first night at Burning Man, I broke down into a fucking crying, exhausted mess. A bunch of drunks I didn't know were trying to build our tent. I didn't know where I was, I was a year out from nearly dying and needed sleep. We were given cots in what I later learned was Rosie's Bar.

The next day morning, I was standing outside my tent in my underwear, screaming death threats at whatever camp was playing "Sunshine Day" at 0-fucking-700.

Later that day, while walking to a jot (portosan) bank, a camp on our street needed line volunteers to help lift their climbing tower. Without thinking, I took my place and Gung Ho!* I would never climb the thing, but people needed my help.

By Monday, I was in the street being a barker for our bar. "Sir! You obviously have a drinking problem! You're not drinking!" This earned me the precious gift of a roll of a 2-year-old's favorite Life Savers. I still have the candy on my desk.

By Wednesday? "Now, next year. . ."

Those drunks, now my family, gifted me the name "Uncle Bullhorn." Some wanted to christen me "Uncle Grandpa" for my storytelling abilities, some "Bullhorn" for my Army-trained command voice. A compromise was reached.

*Gung Ho, from the Chinese gōnghé, literally means "work/pull together."
gridlore: The word Giants over a baseball (Baseball - SF Giants)
Not the classic Ray Milland movie, which is fantastic, and if you have a classic movie house near you, request it. Ray Milland, Jayne Wyman, and one of the first movies to address the issue of alcoholism head-on. It won Best Picture, Best Director (Billy Wilder, who was a genius), Best Actor (Ray Milland), and Best Adapted Screenplay (Billy Wilder and Charles Brackett). As a big fan of classic cinema, this is a gut punch.

No, this is more about the song Talk To You Later by San Francisco's own The Tubes. I was lucky enough to see them when their stage shows were spectacles.

But anyway.

I planned to finish some writing this weekend, but deferred apartment maintenance overwhelmed me. Our recycling bags were overflowing. The dishes still need to be done, and I'm still not entirely over my pneumonia, and of course, Kirsten is battling cancer and COVID at the same fucking time. We may schedule me for a nose tickle, even though this all feels like it is in the fever swamp that is the lower quarter of my lungs.

Did you know you have something in your lungs called the pulmonary toilet? It's a drain in your lower lungs that clears mucus you can't normally expel. Sucks to be me; my lower lungs are such shit (seriously, I love it when new doctors list to the Rice Krispies I call my lower alveoli, alveolar ducts, and bronchioles...).

So I can't muster enough force to clear this unless I am lying down, which means I've gone to bed every night for most of the summer and spent fifteen minutes coughing. Joy.

We did get a grocery order in (Kirsten still can't go out, and I am not allowed alone in stores with beer), so we have plenty of soup. I'm a bit upset that after seeing it on the website as available, we got told this was not in stock. But it appears to be at my local liquor store! Don't worry; this is a beer I will only drink with a big meal after a day of filling my belly.

I have a good outline and a start on the next K'kree article, and I will probably spend some time dredging up my notes on making the Third Imperium more like 4th Century Rome than a Western Federal Republic.

The Giants won today, and the 49ers looked terrible, but it's the preseason, and I'm drinking Budweiser.

Don't judge me.
gridlore: Doug looking off camera with a grin (Default)
After yesterday's Back To School meeting, the legion of SCPD Crossing Guards, which I am a proud member, returned to work. Yes, school started on August 10th. For a relatively old guy who remembers school starting after Labor Day, it is pretty weird to welcome kids back in the middle of summer.

But we did get 90 days of summer vacation. Sadly, health problems for both of us limited our ability to enjoy the season. I have been studying Spanish to better communicate with many of my families, as my school serves a large Latino population. We did make one or two concerts and enjoyed a trip on a scenic railway in Fremont.

I only worked my morning shift today, as I had to visit my cardiologist's office for an echocardiogram and get a three-day heart monitor. There are no real concerns, but people like me with an...exciting? Terrifying? Three-volume health history need to keep up with heart health, and it has been a very long time between heart exams.

Seriously, I have the ICD-10 codes of everything that has tried to kill me or change the way I live tattooed on my right bicep, and I need to find an artist to add a couple of codes.

So, what does this mean for my writing and posting? With more structure in my life, I will be eating on a more regular basis (this has been an issue, depression sucks) and setting time aside after my afternoon shifts - I work 1.5 hours in the morning and another 1.5 in the afternoon - for research, writing, and posting.

Now I just need to figure out how to embed photos on my posts because I have a new TTRPG - Gods of Metal: Ragnarock - that is a fucking shit load of insane fun.

Currently drinking: Elysian Space Dust IPA.
gridlore: One of the penguins from "Madagascar," captioned "It's all some kind of whacked-out conspiracy." (Penguin - Conspiracy)
I'm sick again. Kirsten and I are both dealing with intestinal viral infections.

Being a survivor of cancer and so many other things, I have to laugh at the idea that we were intelligently designed. We are an accident of evolution, still not fully adapted to walking upright. I could build a much better human body, starting with more error-checking in our DNA.

Bah. I hate being sick. Plus, our teeth and bones should regrow naturally.
gridlore: Doug with Kirsten, both in nice clothes for a wedding. (Me - with Kirsten)
"I met her on a strip
It was another lost weekend. . ."

That's us. Kirsten and I were both sick and derailed this weekend. Losing Les Miz was a blow for us both. My self-care plummeted because my brain was just spinning. I'm drinking too much and not eating enough.

Now I'm the one looking through problems. I need to do the dishes. I need a good night's sleep. I need to get back on a regular eating schedule. I NEED TO WRITE!

It's just so hard right now. I'm so tired. I'm so scared.
gridlore: One of the "Madagascar" penguins with a checklist: [x] cute [x] cuddly [x] psychotic (Penguin - Checklist)
I've been working with a great counselor, and today we discussed my current difficulties in taking care of myself. These means things like eating, changing clothes, doing the basic chores around the apartment...and writing.

This simple fact is I've been so invested in making sure Kirsten is doing okay that I've ignored my needs, and that's not healthy. One of my needs is creating and sharing, and since that's what y'all are here for, I really need to get back on that horse.

So tomorrow, after I load the dishwasher, I shall write either the next part of the Hârn breakdown, or my revamp of the K'kree in Traveller. I may also post all the videos and pictures from our ride on the Niles Canyon Railroad.

Thank you for your patience.
gridlore: Doug looking off camera with a grin (Default)
I do apologize for the long absence. Between six days in the hospital and dealing with severe edema in both legs, I've been occupied with medical issues for most of my days. I simply haven't had the time to be creative.

Things are calming down now. My anniversary weekend getaway with Kirsten refreshed me, and I'll be posting new content across the levels this week.

Thank you all for you support and patience.
gridlore: Doug looking off camera with a grin (Default)
It never ends. Last spring I had a procedure to biopsy some nodules in my lungs. We cleared it with the insurance. Paid co-pays. Moved on.

Now we're being told the insurance never paid. Kirsten is drafting an appeal letter, we've been making phone calls, but yet another blade has been added to Damocles' Sword Emporium.

Anything helps. Spreading the word is possibly the best thing you can do if you're tapped out. A lot of little donations can make a mountain.

Anything helps, a hundred small donations can work wonders. Sharing this brings more hands to the effort. Thank you all so much.
gridlore: Doug looking off camera with a grin (Default)
Back in November, I managed to get a Grade II ankle sprain which caused me to miss a ton of work. That healed, but on New Year's Eve, I had a nasty fall while clearing out our old storage unit. Long story short, I suffered a fractured elbow (no surgery needed, thankfully) and trauma-induced bursitis over the greater trochanter. Yes, football fans, I have a hip pointer.

I just have to let things heal, and I'm on Vicodin for pain management. But I'm missing another month of work and bills rejected by my pitiful insurance carrier are starting to show up. Right now, I can't get out of bed without help. It is slowly improving, but that doesn't help in the short term.

To that end, we're running a GoFundMe campaign. Anything helps, really, anything at all. What might be the best thing all y'all could do is share this campaign. Many hands make the burden lighter.

Thank you for anything you can do to help us out. All donations will be used for medical expenses only, you aren't paying for our Burning Man supplies.

More Medical Problems
gridlore: Doug looking off camera with a grin (Default)
My name is Douglas Edward Berry. Not at all exotic. In the Army, I got used to just being known by my last name, as my first name was my rank, "PFC Berry" was how people knew me.

Most people call me Doug, which I'm fine with. There is one variation of my name that one person on the planet is allowed to use. I've had various nicknames, user names, and of course Uncle Bullhorn, my name at Burning Man.

But Douglas E. Bery is what I go by. It's how I sign my name, it's the name I use when I publish things. It is a simple, uncomplicated name with a great family history.

So the the fuck are medical offices utterly incapable of getting my name right? I just got a call confirming an appointment for tomorrow. They asked for Edward. I have never gone by my middle name. I did contemplate it as a nom de plume for a while, something like Edward Karasu (the surname is Turkish for dark water, which is what Douglas means in Scottish Gaelic.)

The usual thing is reversing my name, and asking for Mr. Douglas. That has happened so many times over the past three decades I have to wonder if they bother reading the form where I filled out my name correctly. I know it seems like a minor thing, but it's bloody annoying and potentially dangerous as these places are handling my health care!

I will admit that I let my frustrations out today when the office asked for Edward. I didn't shout, and I wasn't profane, but I did let the office person know that they need to read the name correctly.

Because I have a name.
gridlore: (Burning_Man)
This year was hard. After a two-year hiatus, everyone was rusty and bad at things. As [personal profile] kshandra said, this was the year we brought too much and forgot everything. She's not wrong. We, for example, totally failed to plan for lunch. Breakfast and dinner were covered, but I needed small things to snack on throughout the day to keep my blood sugar and energy levels up. We already have several good plans for next year.

I am both ashamed and angry at my physical failings. My low blood pressure led to constant issues with browning out when I stood. I am physically weak, and could not help out with camp duties. That will change. I'm going to see my doctor about the blood pressure issue, and I am committed to being in better shape next year so I can contribute! I'm also going to fill out volunteer forms for the departments I can do, like BMIR (the official radio station,) Box Office, or Earth Guardians.

I want to be better. I want to carry my share of the load. Everyone who knows me understands that I am determined to do my part.

But many thanks to my campmates who helped me through this hard week. Even to the point of walking me to the porta-potty bank (hereafter referred to as the "jots") and making sure I was OK. They also fed me. So, onto the breakdown!

Friday, August 26th )

Saturday, August 27th )

Sunday, August 28th )

Monday, August 29th )

Tuesday, August 30th )

Wednesday, August 31st )

Thursday, September 1st )

Friday, September 2nd )

Saturday, September 3rd )

Sunday, September 4th )

Monday, September 5th - Tuesday, September 6th )

Well, that's it. I took very few pictures, as this was an amazingly hard year.

See y'all next year in the dust!
gridlore: One of the "Madagascar" penguins with a checklist: [x] cute [x] cuddly [x] psychotic (Penguin - Checklist)
Y'know, usually the hard part of getting a blood draw done is finding a working vein. Today, it was finding a damn lab. This order comes from the Stanford Eye Clinic, and they tell me to use an SHC facility. I look, cool, one relatively nearby.

They only handle blood donations. No one has bothered to update the website. But they send me to one I've been to before, down by Good Samaritan. It's a nice day, the radio is providing good music, let's do this thing!

SHC labs don't have a contract with my insurance, and of course, nobody thought to send in an authorization. But the good news is my usual lab, Quest, will do the test, and they are just in the next building over!

With high hopes, I walk over. . . and that building has been without power for over a day. Fuck. Now, I do have my usual Quest location, I check, they are open until 1600. Great!

I show up there, and a tech is pissed that I don't have an appointment but doesn't bother to tell me that they are closing early until I try to log in for a walk-in.

Done.

I did pick up all my meds, went shopping for a clicking torque wrench (one of the ones where you can set the torque required, and it clicks when you reach it. I have been converted to properly changing tires by a guy named Rainman Ray on YouTube.)

They don't carry them, I'll check at Home Depot and Habor Freight.

I also finally found gallon-sized Gatorade in stock.

But damn, what an annoying day!
gridlore: One of the penguins from "Madagascar," captioned "It's all some kind of whacked-out conspiracy." (Penguin - Conspiracy)
Well, that was a slog. I had a follow-up today with one of Dr. M's associates because the man is insanely busy. Now I expect eye appointments to take a while, but this was epic.

I was there to see if the damn inflammation had gone away (spoiler: no, it hasn't.) But an additional test had been ordered that involved a dye infusion. Normally, when I'm warned ahead of time that someone is going to try to access one of my tiny little veins, I take preparatory steps to help them. I'll drain a 32oz bottle of water on the way to the appointment, I'll wear a hoodie to keep my arms warm, and I'll do exercises while waiting. That sort of thing.

But no warning, so after three stabs, no good vein. So they punted. I'm back on the Prednisolone Acetate drops again, and see Dr. M in August. Tomorrow, I have to go get a blood draw and pick up some meds.

One of the tests is a second check to see if I have Birdshot Chorioretinopathy, which would suck mightily.
gridlore: Doug looking off camera with a grin (Default)
Hey kids, it's an eye update!

After a long day sitting around at the Eye Institute (several doctors were dealing with emergencies which left them way behind) I finally got to see Dr. M. He was very happy that I don't have cancer, but as he pointed out, this still leaves us in the dark about the cause of the eye inflammation.

So we may be subjecting my poor eyeballs to a cyberpunk-ish horror called Electroretinography. Which actually, sounds pretty interesting, if a bit horrifying for someone as paranoid about their eyes as I am. But for now, we're stepping down the steroid eye drops over an eight-week period. If the inflammation is still under control at that time, we can start scheduling the removal of the cataract from my right eye.

The funny thing is they were so far behind that when I left the front office folks had all gone home. I'll have to call Monday to set up my follow-up.

In other news, I'm rather disappointed in our latest Giants store purchase. I take blood thinners, which means I do not react well to cold weather. So. as you can imagine, night games at Oracle Park are a challenge. What do you think of when you hear the word "anorak"?

As the child of a Brit, and having been raised on British TV, I think of a warm, hooded, bit of rain kit, usually with a half-zipper. So I was thrilled to see one for sale on the Giants' site. Folks, I have T-shirts that are heavier than this. I wore it out today, on a very mild day, and it provided no warmth nor protection from even the slightest wind.

sigh At least it looks good. I'll just wear it as the outer layer as part of my San Francisco Summer Evening arctic survival kit.

This weekend is the annual city-wide clean-up for our area, also known as "dump everything in the street weekend." Our pile will be small but interesting. I may take pictures of the more interesting piles of junk. After the visit from the plumber, and the need to clean out under the sinks, we are also heading over to the Household Hazardous Waste drop off. Busy times.

Next week we'll mark 31 years of marriage with a dinner at the one surviving Black Angus in the South Bay. Then next weekend we're seeing Dance with the Dead with Magic Sword opening. An evening of trippy instrumental music.

This has been your Eyes and MoreTM update.
gridlore: Doug looking off camera with a grin (Default)
I had my delayed annual physical today. I wanted to hold off until we had a definitive yes or no on if I had in fact once again developed cancer, as that would change the whole tone of the exam. Thankfully, I don't have cancer, so I scheduled the exam.

A great deal of good news. The first is that I am in fact alive. The second is that the general state of my health is good. Dr, Morgan is very pleased with where I am in terms of holding steady with everything that has happened to me over the years. He added a few tests to my upcoming lab work and gave me the ICD-10 code for Interstitial pulmonary disease, unspecified to add to my tattoo. He diagnosed the problem I've been having with a burning in my calf as tendonitis and refilled a script.

The best news is that even though he's leaving El Camino Helth, he is not leaving the area, and fully expects to have deals with the local Medicare Advantage plans in place. So I can keep my doctor! Not only do I like and trust him, but my medical history is so deep and complex that explaining it to a new doc is like reciting the Odessey.

So I'm still alive, and just need to bug the Stanford Eye doctors about something.
gridlore: One of the penguins from "Madagascar," captioned "It's all some kind of whacked-out conspiracy." (Penguin - Conspiracy)
More insurance fuckery is afoot. Last week, as I mentioned before, I got hit with some big bills for what I had been told were covered visits. Well, today I called my provider.

The really big-ticket whammy was approved, but for some reason was not going through. This provider contacted me by mail asking for a copy of my insurance card, which I emailed them. So now I have the insurer working on the other end.

The other bill, which is about to become two bills, is for the interventional pulmonologist. Nobody told me, but that provider is no Bueno with my insurers. So I may be on the hook for about 850 bucks there. I can and will appeal.

The big problem is that this is the guy who is supposed to be doing my biopsy this Friday! So despite having been told that it had been approved by his office, I stayed on the phone until the CareMore (ha) rep confirmed that this was in fact covered.

Of course, this means I have to tell my surgeon I cannot do a follow-up because even a video appointment with him is over $300. California needs to pass its single-payer plan yesterday.

We bought a lottery ticket Saturday. Can we please win so I can worry about having too much money for a change?

Buckle up!

Apr. 3rd, 2022 10:36 am
gridlore: Doug looking off camera with a grin (Default)
Because I really need more fucking stress in my life right now. . .

I just got two bills for medical treatment totaling nearly $4,000. Both were for appointments and procedures approved by my insurer. I also got a letter asking for a copy of my insurance card, as there were difficulties getting my carrier to pay. Needless to say, Monday after my first shift I shall be burning up their phones.

Did I mention that I got called for jury duty next week? The week I'm scheduled for surgery? I went to the ejuror site to try to say "I have surgery scheduled that week, sorry" online to find that you have only a very limited set of options, and can't ask for a postponement by phone or email. I'm still going to call the court to tell them to fuck off.

It's going to be an interesting week.
gridlore: The word "Done!" in bold red letters. (Done!)
Goddamnit. I cannot, literally cannot take much more. Yesterday morning at work, I found out it was a minimum day from a student. When I went into the school office at the end of that shift to confirm this, the secretary said that she had meant to "drive around and hand you all this" "This" being a little yellow notice that was sent home yesterday. "But I got busy."

Halford wept. On a normal day, I arrive at 1345 and am on station until 1515. The school releases kids in two sets, one at 1425, the second at 1437. On a minimum day, I arrive at 1300 and stay for one hour. The entire school releases at 1325. If a very cool 10-year-old hadn't told me about the change, I would have shown up after everyone had gone home. My school has four guard positions because it is one of the most dangerous in the district in terms of traffic. I gave the secretary my boss' phone number and suggested that if another scheduling change came up, the best bet was to call him and he would alert the guards as well as have it on his radar should a relief guard be needed.

Speaking of which. . . I got home, sat down at the computer, and started feeling miserable. Full-body shaking, I could feel the fever climbing, I could barely work my phone to call in for the afternoon shift. I eventually managed to get into the bedroom without falling over. Long story short? One ruined t-shirt and pair of shorts, I continue to be an expert at puking into containers and spent nearly 14 hours in some form of sleep.

Ah, sleep, perchance to dream. This brings me to the Nightmare. Getting bugs like this is second nature to me now, and I know what to treat them. Acetaminophen, fluids, and rest. But when I go to sleep, I get the same damn dream every time. The details change, but the basic plot is I am involved in a land dispute, usually in England, that is wrapped in Byzantine layers of old deeds and surveyors' maps. I have no idea why I want this land, and it's one of those dreams where I know I'm dreaming, and keep thinking "If I just stop looking at the broken marble column, it will end." This one at least featured a duel. Turns out I'm a pretty good fencer!

But I finally woke up this morning and began to process what Kirsten had told me the night before. Our new trailer arrived, and not only did the dimshit delivery driver manage to cause significant damage, HE HAD BEEN SLEEPING IN OUR TRAILER AND LEFT HIS DIRTY CLOTHES BEHIND! The bracket that holds the front wheel is bent, the wires that link the trailer lights to the truck's lights had been cut clear through, and worst of all, he did enough damage to the brand new floor that it goes through the floorboards. We are livid. We are talking about getting a lawyer. This is the same idiot who "forgot" to get the envelope with the trailer keys out of his truck when he had what he said was an engine problem and had to transfer our trailer to a different carrier.

I'm serious, world, I can not handle anything else going wrong.
gridlore: One of the penguins from "Madagascar," captioned "It's all some kind of whacked-out conspiracy." (Penguin - Conspiracy)
Halford, what a day. Our trailer was supposed to be delivered today, but the driver bringing it had his engine die hard in Anaheim. OK, tomorrow is good. Then we learn that the first driver forgot to get the envelope with the damn trailer keys out of his cab! Luckily, Outbound had the key code and we're having them shipped. When do they show up? Anyone's guess.

Luckily I already had tomorrow off for an appointment at the Stanford Eye Clinic. Which I'm now doing solo, so [personal profile] kshandra can be at work for both the trailer and the keys. Speaking of medical issues. . .

It feels like I'm getting a new doctor every three days. I understand the need for speed here, I mean, I'm the guy who might have cancer again, but I've run into the most frustrating thing in existence: the convoluted schedule of doctors. I get a referral for an interventional pulmonologist to do the biopsy. Call him the other day. "He's only in the office Tuesdays and Thursdays, and needs to see you right away!"

Too bad I'm booked for Thursday. So now, next Tuesday I'm getting a fucking lumbar puncture and then going to see this guy while still flying on pain meds. [personal profile] kshandra WILL being coming back with me to speak with the doctor. Because fuck all of this. But at least the next series of appointments are set, right?

Right?

I laugh. Because today, about ten minutes before I had to go handle the nightmare that is school let-out on Wednesdays, I get a call from a different interventional pulmonologist to set up a consult. When I pointed out I already had a damn appointment, she sounded shocked, then looked and said "oh, yeah. . . "

NONE OF THESE OFFICES ARE COMMUNICATING WITH EACH OTHER!! And I, with my stroke-fuzzed brain, am supposed to juggle all these names and dates, which is something I simply cannot do.

I have next week off. I'm hiding in Bear Fort. This crap has me so mentally exhausted it's affected my self-care and my ability to be cheerful to my kids at work.
gridlore: One of the penguins from "Madagascar," captioned "It's all some kind of whacked-out conspiracy." (Penguin - Conspiracy)
I love it when, after multiple examinations by medical equipment that seems like science fiction, a dozen tubes of my blood analyzed by labs, and being poked and prodded by people with advanced degrees and years of experience, the answer boils down to. . .

"Damned if I know."

The issue is systematic inflammation that's being seen in various places. But as Dr. Sundaramurthy said today, "I'd rather treat the person than the symptom." Which is a plan I agree with.

So, next up is a lumbar puncture, a PET scan, and the potential of having a biopsy done on one of the inflamed lymph nodes. The problem is this chain is in my chest, behind my sternum, so this might be a more involved surgery.

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gridlore: Doug looking off camera with a grin (Default)
Douglas Berry

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